Living with Lichen Sclerosus: Amy's Story
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Living with Lichen Sclerosus: Amy's Story

24 July 2024

LS, also known as Lichen Sclerosus, is a chronic skin condition that mainly affects the genital area. Symptoms include burning, flaking, itching and, in more severe cases, open wounds, blisters and bleeding. The condition can cause scarring and adhesions, which makes it even more painful and complex. Unfortunately there is a big taboo around it, so many people suffer in silence. Amy shares her personal story to raise awareness of LS.


The first signs of LS

Amy remembers that as a young girl, even before her first period, she often had yeast infections and bladder infections. She was constantly itchy and uncomfortable. The complaints got worse once she started menstruating. "When I started having sex, I noticed something wasn't right. I tore and bled pretty much every time, often together with yeast infections," Amy says.


The long road to a diagnosis

Amy was only diagnosed with LS a year and a half ago, after a long and difficult journey. "As a child I was often at the doctor's and kept being sent home with another ointment. Once I started having sex, my complaints were attributed to the sexual abuse I experienced from age thirteen to fifteen," Amy explains. "It was never really taken seriously until I had an abnormal smear test and had to see a gynaecologist. At the follow-up smear after a procedure, the gynaecologist noticed white patches and said I probably had a skin condition."


Daily struggles and the impact on life

The symptoms of LS have a big impact on Amy's daily life. "My vulva burns when I'm on my bike or wearing tight trousers. Sitting on chairs that don't give way doesn't feel good either and really burns," says Amy. She only found out these complaints weren't normal when she started reading about LS. "I always thought every woman experienced this, but that turned out not to be the case."

💜 Soft protection for sensitive skin

With LS, softness is essential. Disposable products often contain plastic and chemicals that cause extra irritation. Washable products made with natural materials can help:

  • ✓ No plastic — prevents a sweaty feeling and irritation
  • ✓ Soft natural fabrics — less friction
  • ✓ Breathable — better airflow reduces discomfort
  • ✓ Extra cushioning — works like a little pillow with tight clothing

Amy stresses that GPs often lack knowledge about LS. "My mother is a doctor's assistant, and only now does she see how many women come in with complaints that could be LS but often aren't recognised by the GP."

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Treatment and relief of symptoms

Amy treats her LS with a combination of a hormone (steroid) ointment and a greasy ointment. "I use the hormone ointment three days in a row and on the other days I apply the greasy ointment. It helps relieve the symptoms and makes everything feel more supple," Amy explains. Although hormone ointment isn't always popular because of possible side effects, Amy finds it keeps her symptoms under control.


Living with LS: sexuality and relationships

LS has a big impact on Amy's sex life. "I haven't had penetration for five years because I keep tearing and bleeding. But I think that with a lot of patience, time, understanding and plenty of lubricant it should be possible," says Amy. She points out that with LS an oil-based lubricant works best, because other types tend to dry out.


Advice for others with LS

Amy advises women who suspect they have LS to see their GP and ask for a referral to a gynaecologist. "Don't let the GP make the diagnosis, because knowledge of LS is often too limited. A gynaecologist or vulva clinic has more expertise."

Alongside her medical treatment, Amy also uses LottePads products. "I take the pill continuously because of endometriosis, so I haven't used the pads during a period yet. But when my LS is more active or I'm wearing tight trousers, I do use them. They give more cushioning and work like a little pillow, without the sweaty effect of disposable pads."

💚 How Amy uses LottePads

Amy uses LottePads products because they are softer than disposables and don't make her feel sweaty.

Washable panty liners

With LS, a soft panty liner is often the most useful: an extra layer against friction, even when you're not on your period.

View the panty liners →

💬 Amy's tip:

"They give more cushioning and work like a little pillow, without the sweaty effect of disposable pads."

💡 Especially for LS:

Use them as extra protection with tight clothing or as a cushion for extra comfort — even without a period. The soft fabric reduces friction and the breathable material prevents a sweaty feeling.

Amy stresses how important good products and knowledge about LS are for relieving symptoms and breaking the taboo. "It's crucial that women know they are not alone and that there are solutions that can improve their lives."


Conclusion

Amy's story shows that LS is a complex condition that often goes unrecognised. With the right diagnosis, treatment and supportive products, it is possible to improve quality of life. Breaking the taboo and sharing experiences helps others feel less alone and seek the right help.


Frequently asked questions about LS and washable products

Are washable products suitable with Lichen Sclerosus?

Some women with LS, like Amy, experience less irritation with washable products because they contain no plastic layer or chemicals. Soft, breathable fabrics cause less friction and less sweating. Always discuss with your doctor what works best for you.

Can I use washable products without a period?

Absolutely! Like Amy, you can use them as extra protection and cushioning — especially with tight clothing or when your vulva is extra sensitive. They work like a soft cushion that reduces friction and adds comfort.

Do washable pads help with LS symptoms?

Washable products don't cure LS, but they can help relieve symptoms by causing less irritation. The breathable material prevents sweating, the soft fabric reduces friction, and the absence of chemicals may reduce itching and burning. It is a supportive measure alongside your medical treatment.

How do I wash washable products with LS?

Wash at 40-60°C with a mild, fragrance-free detergent. Do NOT use fabric softener (it can irritate). Air dry. With LS it is extra important to rinse well so no detergent residue is left behind that could irritate. Full washing instructions →

What is the best thing to use with LS?

With LS, a soft washable panty liner is often the most useful: an extra layer against friction with tight clothing or on the bike, even without a period. Always discuss your treatment with your GP or gynaecologist.


🧺 New to washable? Read our complete washing instructions to keep your products looking good for years!

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